I have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (or ME/CFS)…and then I got long covid. Long covid (of the nervous system type) is being described as mirroring the way which ME/CFS is medically and socially disbelieved…mirroring the way in which ME/CFS have always been excluded from the medical system…mirroring the trauma of having to always defend how you feel, as if the weirdness of these central nervous diseases was somehow always your personal failure.
This is a blog about how it is to deal with long covid socially and medical, when you have already lived through – and are still inside of – the beast that is ME. If this was a cocktail of the beverage variety, it would have an impossibly long bitter after taste, potentially with an inextinguishable sambuca-flame to begin.
A central nervous system shaken (not stirred) into timesoup. – 23RD OCTOBER 2020
This blog is in timesoup. I can’t write straight forwardly about long covid like a diary would be, because the experience of long covid itself is not a linear or sequential matter. There is also a need to use what’s newly discovered about long covid to look back and understand what happened. I’m tackling a […] Read more
(Not) knowing long-covid fatigue. – 11TH NOVEMBER 2020
Long covid news of the day: The people who end up with long covid (as many as 1 in 5 covid cases do), are not the same as those vulnerable to severe, acute covid. The majority of long covid sufferers are under 45, and describe themselves as ‘youngish, fit, and healthy’. There are currently 3 […] Read More