Category: ME/CFS + Long Covid Cocktail

ME/CFS + Long Covid Cocktail – a blog

I have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (or ME/CFS)…and then I got long covid. Long covid (of the nervous system type) is being described as mirroring the way which ME/CFS is medically and socially disbelieved…mirroring the way in which ME/CFS have always been excluded from the medical system…mirroring the trauma of having to always defend how you feel, as if the weirdness of these central nervous diseases was somehow always your personal failure.

This is a blog about how it is to deal with long covid socially and medical, when you have already lived through – and are still inside of – the beast that is ME. If this was a cocktail of the beverage variety, it would have an impossibly long bitter after taste, potentially with an inextinguishable sambuca-flame to begin.