This post follows on from my last (link here) and continues the themes about battling for a diagnosis, medical gaslighting concerning to ME, long-covid and related neurological conditions. However this post focuses more on the fragility of hope and what battling the medical industrial complex means as a feminist and crip work. It is about […]

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I know well that a diagnosis may not at all be a solid thing. I am now 2.5 years into long-covid, and I’m sorry that I haven’t written a blog post in really long time. I haven’t felt like recounting what’s been happening in this public form until now. This is the first of two […]

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legs outstretched and raised on a pillow on bed

Long covid news of the day: The people who end up with long covid (as many as 1 in 5 covid cases do), are not the same as those vulnerable to severe, acute covid. The majority of long covid sufferers are under 45, and describe themselves as ‘youngish, fit, and healthy’. There are currently 3 […]

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an arm with a intravenous line, in a medical setting

This blog is in timesoup. I can’t write straight forwardly about long covid like a diary would be, because the experience of long covid itself is not a linear or sequential matter. There is also a need to use what’s newly discovered about long covid to look back and understand what happened. I’m tackling a […]

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