ME/CFS + Long Covid Cocktail – a blog
I have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (or ME/CFS)…and then I got long covid. Long covid (of the nervous system type) is being described as mirroring the way which ME/CFS is medically and socially disbelieved…mirroring the way in which ME/CFS have always been excluded from the medical system…mirroring the trauma of having to always defend how you feel, as if the weirdness of these central nervous diseases was somehow always your personal failure.
This is a blog about how it is to deal with long covid socially and medical, when you have already lived through – and are still inside of – the beast that is ME. If this was a cocktail of the beverage variety, it would have an impossibly long bitter after taste, potentially with an inextinguishable sambuca-flame to begin.
This post follows on from my last (link here) and continues the themes about battling for a diagnosis, medical gaslighting concerning to ME, long-covid and related neurological conditions. However this post focuses more on the fragility of hope and what battling the medical industrial complex means as a feminist and crip work. It is about […]
Read moreI know well that a diagnosis may not at all be a solid thing. I am now 2.5 years into long-covid, and I’m sorry that I haven’t written a blog post in really long time. I haven’t felt like recounting what’s been happening in this public form until now. This is the first of two […]
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Long covid news of the day: The people who end up with long covid (as many as 1 in 5 covid cases do), are not the same as those vulnerable to severe, acute covid. The majority of long covid sufferers are under 45, and describe themselves as ‘youngish, fit, and healthy’. There are currently 3 […]
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This blog is in timesoup. I can’t write straight forwardly about long covid like a diary would be, because the experience of long covid itself is not a linear or sequential matter. There is also a need to use what’s newly discovered about long covid to look back and understand what happened. I’m tackling a […]
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